MySquishy
- #1
Hey y’all!
So my cousin’s baby was born with some health challenges, among them difficulty breathing and eating independently. She’ll be coming home from the NICU with a trach and a feeding tube.
So I made her 2yo big sister a teddy with the same tubies as baby. It can be used it as a teaching tool to explain what’s going on, and she’ll have a “baby” to take care of too. (and tubes she’s allowed to touch!)
Anyway, I couldn’t have done it without fish lore. Seriously!
Most of the information/ tutorials online on how to modify a toy like this assume you already have a child with a trach/ G-tube/ PEG tube, in which case you can just use an old one after you’ve replaced your child’s with a new tube. ( they have to be changed out every so often)
I had no such old tube, so I had to get creative. Pretty quickly, I hit on the idea of using the plug from something inflatable, like a beach ball or water wings, for the G-tube. My brilliance was verified when I found an entry on a child life specialist’s blog using that very idea. Bingo!
Finding an alternative to an actual trach tho, was hard. It needed to be both realistic looking, and able to be sewn in securely since I’m giving it to a toddler. I thought of, and subsequently filled my amazon history with, long beads, plastic drinking straws, silicone drinking straws, pvc pipe, (but alas, the smallest diameter is too big.) pacifiers, (to hold the straw and serve as kind of a trach collar kind of thing) cord ties, pex pipe...
And after hours ( days) of looking at every kind of straw imaginable and wondering what in the world is going to work, I gave up and pulled up fish lore for some mindless reading.
At some point halfway down a thread, the light bulb went off and I realized: everything that made PVC pipe perfect is true of air hose fittings!! In no time flat I had located a T connector with an air pressure valve, and boom. Problem solved!
Because it’s hollow inside, I could sew it on like a button, secure as can be. And I glued the twisty knob in with superglue so it’s essentially one piece now. The trach collar is cloth with button holes sewn in for the “trach” to poke through, and for the elastic trach tie to go through.
Also, aquarium tubing fits perfectly on the top of a 60ml med syringe I had, and together with another T valve I modified as the tip, makes a feeding tube extension set. (because the female end of the T piece happens to fit just snugly in the open “g- tube” port and stays instead of falling right out like the plain aquarium tubing does.)
Tada!
!





So my cousin’s baby was born with some health challenges, among them difficulty breathing and eating independently. She’ll be coming home from the NICU with a trach and a feeding tube.
So I made her 2yo big sister a teddy with the same tubies as baby. It can be used it as a teaching tool to explain what’s going on, and she’ll have a “baby” to take care of too. (and tubes she’s allowed to touch!)
Anyway, I couldn’t have done it without fish lore. Seriously!
Most of the information/ tutorials online on how to modify a toy like this assume you already have a child with a trach/ G-tube/ PEG tube, in which case you can just use an old one after you’ve replaced your child’s with a new tube. ( they have to be changed out every so often)
I had no such old tube, so I had to get creative. Pretty quickly, I hit on the idea of using the plug from something inflatable, like a beach ball or water wings, for the G-tube. My brilliance was verified when I found an entry on a child life specialist’s blog using that very idea. Bingo!
Finding an alternative to an actual trach tho, was hard. It needed to be both realistic looking, and able to be sewn in securely since I’m giving it to a toddler. I thought of, and subsequently filled my amazon history with, long beads, plastic drinking straws, silicone drinking straws, pvc pipe, (but alas, the smallest diameter is too big.) pacifiers, (to hold the straw and serve as kind of a trach collar kind of thing) cord ties, pex pipe...
And after hours ( days) of looking at every kind of straw imaginable and wondering what in the world is going to work, I gave up and pulled up fish lore for some mindless reading.
At some point halfway down a thread, the light bulb went off and I realized: everything that made PVC pipe perfect is true of air hose fittings!! In no time flat I had located a T connector with an air pressure valve, and boom. Problem solved!
Because it’s hollow inside, I could sew it on like a button, secure as can be. And I glued the twisty knob in with superglue so it’s essentially one piece now. The trach collar is cloth with button holes sewn in for the “trach” to poke through, and for the elastic trach tie to go through.
Also, aquarium tubing fits perfectly on the top of a 60ml med syringe I had, and together with another T valve I modified as the tip, makes a feeding tube extension set. (because the female end of the T piece happens to fit just snugly in the open “g- tube” port and stays instead of falling right out like the plain aquarium tubing does.)
Tada!
!




